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WBCPC Newsletter - January Issue 2020
Dear <<First Name>>,
Will you join us in Amsterdam?
WBCPC Annual Meeting 2020
We invite you to join us in Amsterdam, The Netherlands on 22 March 2020 for the World Bladder Cancer Patient Coalition Annual Meeting. This year, the theme is “Ensuring bladder cancer is at the top of global health policy agenda.” Strong bladder cancer patient groups across the world can bring bladder cancer to the top of global health policy agenda and help ensure the best possible outcomes for patients.
One of the core missions of WBCPC is to foster an international community of people affected by bladder cancer. We will discuss different avenues for engaging our multi-stakeholder network to help us deliver this mission, exchange ideas on how to connect these communities with each other and with resources, and how to bring unity for the vision and goals of bladder cancer patient organisations worldwide.
The meeting will also bring attention to  some of the most pressing issues in the community, from medicines shortages to patient involvement in medicines development and how the change can be achieved through collaboration, advocacy and policy change. 
The agenda will be available soon, but you can already register via the button below.
Register today

I am and I will - World Cancer Day - 4 February

I am a supporter and i will raise awareness about bladder cancer
This year, the World Cancer Day marks its 20th anniversary. The UICC, an organization behind the global initiative, invites everyone to join with “I am and I will” campaign of personal action for positive change, saying "it will be a year to ignite action to raise awareness, drive research agenda, ensure optimal access to treatment and care worldwide and save lives."
The World Bladder Cancer Patient Coalition invites you to join the campaign and show your support for the community of people affected by bladder cancer. So, this 4 February, whoever you are and wherever you are, your actions can make a positive impact and contribute to a lasting change. You can find ways to get involved and contribute on the World Cancer Day website, including personalized campaign materials in different languages.
If you have a moment, please click below to tweet and show your support right now.

 Have a moment? Click below to tweet!

Tweet: "I am a supporter and I will take action to raise awareness about bladder cancer! @WorldBladderCan #WorldCancerDay

Out with Cancer Study

Out with cancer study
Researchers from Western Sydney University in Australia  are conducting an international  study to understand LGBTQI+ experiences of cancer and cancer care. The researchers are interested in the experiences of all LGBTQI+ people who have had cancer or medical intervention to reduce cancer risk, as well as their carers and LGBTQI+ people who have cared for someone with cancer.
The information will be used  to develop better information and support for LGBTQI+ people with cancer and carers.
You can take part in the study or share it on social media via the button below.
Check out the study
WBCPC joins All.Can International
The World Bladder Cancer Patient Coalition is delighted to become a member of All.Can International.
All.Can is an international multi-stakeholder initiative working to improve the efficiency of cancer care by focusing on what matters to patients and driving  sustainable healthcare solutions for everyone affected by cancer. The patient perspective is too often forgotten in considerations of how cancer care can be improved. WBCPC will work closely with the initiative, its members and stakeholders to ensure that the voice of people affected by bladder cancer contributes towards the important work of All.Can.
In 2019, All.Can has launched the results of the first international Patient Survey of its kind,in over 10 counties, which asked almost 4,000 cancer patients and carers where they identified inefficiencies in their care.
Learn more about All.Can & Patient Study
World Health Organisation Dedicates 2020 to Nurses
Nurses and midwives play a vital role in providing health services. These are the people who devote their lives to caring for others and meeting everyday essential health needs of countless people who count on them. The World Health Assembly has designated 2020 the International Year of the Nurse and the Midwife.
The World Bladder Cancer Patient Coalition recognizes the resilience, dedication and determination of the healthcare professionals at the center of the bladder cancer service. The nurses caring for people affected by bladder cancer often face dwindling resources and limited time and money of constrained healthcare services and yet they find a way to offer the care that fit their patient’s needs and deliver as a good a bladder cancer service as they could.
In 2020, join us in recognizing the nurses devoted to our communities and our healthcare services. Say thank you in person, share your stories with us on Twitter, don’t forget to tag us @WorldBladderCan You can also email us at We will be sharing these throughout the year.
Fight Bladder Cancer UK published a feature based on interviews with bladder cancer nurses in the United Kingdom in the Fight! Magazine #7, you can download the magazine and read the article on their website.
European Cancer Forum
On 28 February, WBCPC Executive Director Alex Filicevas attended the European Cancer Forum: Towards a New Era of Cancer Care, in Brussels, Belgium. As the European Union is preparing to launch its Beating Cancer Plan – there has never been more multi-stakeholder focus and political will to take action on cancer in Europe. The event sought to gather ideas on policy recommendations to feed into the development of the upcoming plan, which will focus on an entire pathway from research, diagnosis, treatment to palliative care and survivorship. The ambitious plan is set to make big leaps in Europe as part of its mission on cancer, which will undoubtably contribute to the change in cancer control across the world.

Bladder Cancer in the News

FDA Approves immunotherapy Pembrolizumab to Treat Patients with BCG-Unresponsive, Non-Muscle Invasive Bladder Cancer Read more

Detection of bladder cancer using urinary cell-free DNA and cellular DNA Read more (open access)

Spotlight on gender-specific disparities in bladder cancer Read more

Why aren't advanced bladder cancers being treated? Read more

Important Dates

4 February 2020. European Comission's Europe's Beating Cancer Plan Event. Brussels, Belgium

13-15 February 2020. ASCO Genitourinary Cancers Symposium. San Francisco, USA

20-21 February 2020. ESU-ESOU Masterclass on Non-Muscle-Invasive Bladder Cancer. Prague, Czech Republic

20-24 March 2020. European Association of Urology Congress. Amsterdam, The Netherlands

22 March 2020. World Bladder Cancer Patient Coalition Annual Meeting. Amsterdam, The Netherlands.

21-23 March 2020. European Association of Urology Nurses Congress. Amsterdam, The Netherlands

3-7 April 2020. European Society for Radiotherapy and Oncology, Vienna Austria

Meet our members

The World Bladder Cancer Patient Coalition members represent 9 bladder cancer patient organisations in 7 countries. Visit our website for more information.
Would you like to become a member of WBCPC? Get in touch!
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The World Bladder Cancer Patient Coalition aisbl benefits from the support of F. Hoffman-La Roche AG, AstraZeneca, Bayer AG, Bristol-Myers Squibb, Merck, Ipsen, Janssen Pharmaceutica, MSD, Pfizer. The work of the organisation is the sole responsibility of the World Bladder Cancer Patient Coalition.
Copyright © 2019 World Bladder Cancer Patient Coalition aisbl All rights reserved.

World Bladder Cancer Patient Coalition aisbl is an international non-profit organization registered in Belgium. 
World Bladder Cancer Patient Coalition
Square de Meeûs 38-40
Brussels 1000
Registration Number:  0720.618.047

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World Bladder Cancer Patient Coalition · Square de Meeûs · 38-40 · Bruxelles 1000 · Belgium

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