WBCPC Newsletter - March Issue 2020
In the March issue of the WBCPC newsletter, we bring you updates on:
  • Bladder Cancer & Covid-19
  • WBCPC General Assembly Meeting
  • Video: The Landscape of Advanced Bladder Cancer
  • EFPIA Blog - Industry - let's step up
  • Bladder Cancer Awareness Mont
  • Free Weekly online support group - Healing and Cancer
  • Food and Nutrition tips during self-quarantine
  • Podcast: Cancer Care during Covid-19 in Italy
  • Bladder Cancer in the News

 Have a moment? Click below to tweet!

Tweet: "People affected by bladder cancer need our support more than ever in light of COVID-19 @WorldBladderCan and its member patient organisations continue the work supporting bladder cancer patients around the world during this pandemic #BladderCancerAware"
The global COVID-19 (novel Coronavirus) pandemic is now affecting most countries in the world. Many of us have become concerned about contracting the virus, and what it means for our community of people affected by bladder cancer. It is important that both patients and their families take precautions to lower their risk of getting COVID-19.

Our member bladder cancer patient organisations continue to provide support and guidance for people affected by bladder cancer in their countries. 

All the resources and the information is available to anyone who needs it, regardless of where you live. Although, some information may be country specific. 

Bladder Cancer Advocacy Network (US) : COVID-19 and Bladder Cancer FAQ
Fight Bladder Cancer (UK): Info page on COVID-19
Action Bladder Cancer (UK): Coronavirus information
Bladder Cancer Canada: Bladder Cancer and COVID-19 FAQ
Blærekreftforeningen (Norway) : Our experts on Coronavirus
Associazione PaLiNUro (Italy): Guidance for Coronavirus
Bladder Cancer Awareness (Australia): Bladder Cancer and COVID-19: What's the deal?

Many of our member organisations are collecting questions from patients, survivors and their families. If you are unable to find an answer to your question, make sure to submit it - your question may help others too! You can find information about this on individual organisation's websites.
American Society of Clinical Oncology launched the ASCO Coronavirus Resource page
European Society of Medical Oncology launched the Coronavirus Resource page
The European Association of Urology has postponed its Annual Congress which was due to take place in March. The new dates are 17-21 July 2020, more information available on the EAU20 website.

EAU has published a number of COVID-19 resources for urologists available on the EAU website.

WBCPC 2nd General Assembly Meeting 2020

Despite the current challenges and travel restrictions, our member organisations came together for the WBCPC General Assembly meeting online. We've reviewed the activities and performance of the World Bladder Cancer Patient Coalition in its first year. Looking ahead, our members discussed developing plans for 2020 to support bladder cancer patients worldwide especially in light of the current pandemic. Our work and mission as a global voice for people affected by bladder cancer continues into 2020 and beyond.
You may already be aware that on March 3, the WBCPC Board has decided to cancel the planned WBCPC Annual Meeting 2020 in light of the COVID-19 developments at the time. Since, majority of large gatherings have now been cancelled across the world. 

We are currently exploring alternative arrangements for the WBCPC Annual Meeting to take place in 2020 and will share more details with you soon.

To receive latest updates from WBCPC, make sure to follow us on Twitter.
Join our growing international community
The World Bladder Cancer Patient Coalition has a vision to have a bladder cancer patient organisation established in each country. We are here to help grow, connect and support these groups on their journey. Whether you represent a patient organisation, run a peer support group or would like to become a bladder cancer patient advocate in your country - get in touch! 
Get in touch!
VIDEO: The Landscape of Advanced Bladder Cancer: A Review of the Last 30 years
Cora Sternberg discusses the significant advancements in the treatment of advanced bladder cancer looking back over the last 30 years, and the recent progress that is offering significant improvements in the overall survival for those patients who respond to the treatments. 
BLOG: Patient Organisations and Europe's fight against COVID-19: Industry - let's step up
In the midst of this unprecedented situation patient communities represent, and care for, those most vulnerable to the impact of COVID-19. Check out the blog post on EFPIA website encouraging the pharmaceutical industry to step up and be there for patient organisations they work with.
In order to support individuals in eating healthy during self-quarantine and isolation, WHO/Europe has prepared a set of general tips, a list of "best food buys" and a few examples of recipes for inspiration. Everyone can take advantage of this information and it is not developed specifically for cancer patients. 
This May join us for the World Bladder Cancer Awareness Month

Would you like to join the campaign this May, or start one in your country? Get in touch with us at info@worldbladdercancer.org  Bladder cancer is one of the most common cancers across the globe, yet many people are not aware of the risks or early warning signs to look out for. We want to end its status as a ‘forgotten cancer’. 

Whilst we won't be able to join together for many activities that we would organise in person across the world, our community is still there to share, support and raise awareness online. 

Free weekly online support group chat with our friends, Healing and Cancer
Join Dr. Rutledge and Psychology Professor Gabriela Ilie as they host the Healing@Home Empowerment Series every Sunday at 18:00 EST / 23:00 GMT for the next six weeks.
Learn about:
  • Integrative Cancer Care (combining medical and complementary care / diet etc)
  • Mind-Body Healing Techniques
  • Mindfulness-based Stress Reduction
  • Connection while at home
Click here for more details on how to connect.
PODCAST: Cancer care during COVID-19 In Italy
Listen to this podcast Cancer care during the spread of coronavirus disease 2019 (COVID-19) in Italy: young oncologists’ perspective. Matteo Lambertini shares the difficulties of cancer treatment during this pandemic.

Click here to listen to the podcast on Soundcloud.

Bladder Cancer in the News

Bacillus Calmette-Guéring (BCG) Therapy for Bladder Cancer: An Update Read more (Open access)

Bladder-sparing treatment options in localised muscle-invasive bladder cancer Read more 

Complete response to trastuzumab and chemotherapy in recurrent urothelial bladder carcinoma with HER2 gene amplification: A case report Read more (Open access)

Netrin-1: A new promising diagnostic marker for muscle invasion in bladder cancer Read more

KEYNOTE-676: Phase III study of BCG and pembrolizumab for persistent/recurrent high-risk NMIBC Read more (Open access)

Targets for Therapy of Bladder Cancer Read more

Important Dates

31 May - 2 June 2020. American Society of Clinical Oncology Annual Meeting, Virtual meeting

17-21 July 2020. European Association of Urology Congress. Amsterdam, The Netherlands (date change)

18-20 July 2020. European Association of Urology Nurses Congress. Amsterdam, The Netherlands (date change)

31 July - 4 August 2020. European Society for Radiotherapy and Oncology, Vienna, Austria (date change)

18-22 September 2020. European Society for Medical Oncology. Madrid, Spain. 

20-22 October 2020. World Cancer Congress. Muscat, Oman.

Meet our members

The World Bladder Cancer Patient Coalition members represent 10 bladder cancer patient organisations in 7 countries. Visit our website for more information.
Would you like to become a member of WBCPC? Get in touch!
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The World Bladder Cancer Patient Coalition aisbl benefits from the support of Astellas Pharma, Bristol-Myers Squibb, Ferring, Ipsen, Merck, MSD, Pfizer and Seattle Genetics. The work of the organisation is the sole responsibility of the World Bladder Cancer Patient Coalition.
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Copyright © 2020 World Bladder Cancer Patient Coalition aisbl All rights reserved.

World Bladder Cancer Patient Coalition aisbl is an international non-profit organization registered in Belgium. 
World Bladder Cancer Patient Coalition
Square de Meeûs 38-40
Brussels 1000
Registration Number:  0720.618.047

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